The Newsletter of the
International Stuttering Association (ISA)
6th Issue, September, 1996

Mohrunger Str.17, 40599 Düsseldorf, Germany. Tel: +49 211 74 1585. Fax: +49 211 7404428. e-mail:100605.2720@compuserve.com

Contents

Expansion of ISA Networks (27 member groups)

Steady Achievement of Goals

-Reports of Member Nations and 6 Working Groups-

News News News

Contents:

News from ISA Member Nations

ARGENTINA

Argentine Stuttering Association (ASA)

CANADA

Canadian Association for People Who Stutter (CAPS)

The Canadian Association for People Who Stutter (CAPS) now has an active World Wide Web page on the Internet at <http://webcon.net/~caps>. CAPS also has a long-distance phone number, 1-888-STUTTER, (788-8837), that can be called at no charge from anywhere in Canada. The Wiegand Memorial Foundation has provided much appreciated financial assistance for this toll-free phone line. We have also recently published the first issue of CAPS News, our quarterly national newsletter, which is also available on our Internet home page.

CAPS '97, the Fourth Canadian Conference for People Who Stutter, will be staged on August 14-17, 1997 in Vancouver on Canada's scenic West Coast. For a daily Internet camera (Netcam) view of the Vancouver skyline, we suggest you check out the following Internet site: <http://www.multiactive.com>. Previous CAPS conferences were in Banff (1991) in Canada's Rocky Mountains, Ottawa (1993), and Toronto (1995).

As well, CAPS and the National Stuttering Project (NSP) in the United States are presenting a one-day conference dedicated to the Year of the Child Who Stutters, in Toronto on September 21, 1996. The conference will feature Internet Video Conferencing enabling people from across the world to participate. We also plan to use video applications at CAPS '97. If you are interested in taking part in worldwide Video Conferencing projects please contact David Block at <dblock@accent.net>. (Jaan Pill)

DENMARK

Foreningen For Stammere, Danmark

The Danish Association for Stutterers will celebrate its 25 years anniversary on October 25, 1996. We will make a conference with the title: "A Life With Stuttering". At the conference six speakers will tell about different persons of their lives. After this a panel will discuss how myths and ignorance about stuttering in the society in general can be replaced by knowledge about stuttering.

(Per F. Knudsen)

GERMANY

Bundesvereinigung Stotterer-Selbsthilfe e.V.

The German Association of People Who Stutter will be holding the 23rd German Stuttering Conference in Kassel, October 4-6, 1996.

At the moment our great challenge is: How to maintain the financial basis for self-help in Germany and our previous, extensive supply in our association, because the state will give up sponsoring self-help. Therefore we think intensively about how to get sponsors from economy and society.

Our association has a bit more than 1000 members on July 1996. It is our goal to double this number during the next years by many efforts, as for example in having more and more contact persons in our regions for questions related on membership.
Our association again published new books. One of them is an excellent brochure for adolescents. Scatman John, Marilyn Monroe and others you can find nearly on every page of this brochure. (Christoph Stosch)

INDIA

Fluency Club

Fluency Club has organized 1st Annual Conference on People Who Stammer, a Project on Rehabilitation of Stammerers on 18th May 1996. More than 200 people attended. The inauguration was done by Delhi-Chief Minister Mr. Sahib Suigh Verma. Dr. J.C. Nigam, senior speech therapist, and Dr. Rama Pandet, speech pathologist, answered some very common questions raised by people about stammering and its cure.(Roop Kumar Sharma)

JAPAN

All-Japan Genyukai Association

The 30th-Memorial-Convention (3-5/May, 1996) was finished with a remarkable success. We had about 200 participants. In the convention we had workshops, panel discussions, social activities and so forth. The keynote speaker was Tomoaki Ogura, one of the most famous announcers in Japan. He is a very fluent speaker before microphone, but he still stutters when he is relaxed! His speech encouraged and inspired us. And in the banquet we were able to "meet" Scatman John on screen (he sent us a video letter) and many people mentioned his video is most impressive. The next convention will be held in FUKUOKA.

(Kunihiko Ikeda)

Japan Stuttering Project (JSP)

The JSP held its 7th summer camp for children from elementary school to high school ages who stutter and their parents on August 9, 10 and 11, 1996. This is one of the major annual events of the JSP. At this camp, participants undertake open discussions about stuttering, and learn to accept stuttering. They also undertake some speech training through performing a play. According to our experience, the children may not find noticeable changes in the symptoms of their stuttering, but will certainly become more positive and active in their school lives. It seems to be very significant for them to be able to meet other children of their age who also stutter. About 60 children will participate in this camp from all over Japan. (Shinji Ito)

NORWAY (a new member)

Norwegian Stammering Association (NIFS)

The annual weekend "Stam Camp" was held on the second weekend of June, 1996. This year the arrangement took place at the "Halmrast Center for Stuttering Therapy" where the Norwegian Stuttering Association was founded by students 20 years ago. To celebrate the 20th anniversary the founders and the various chairmen of the association were specially invited. Presentations were held by therapists at the center giving an overview of the therapy offered today, and various social activities were arranged over the weekend.

A working group has been set up to outline the strategy and goals of the association for the next coming years. The aim is to define specific tasks that the association is to concentrate on. The results of the working group is to be presented at the next annual meeting in March 1997.

The Norwegian Stammering Association (NIFS) is concerned about the low priority therapy for adult stutterers is being given. The recent trend in speech therapy in Norway, is to concentrate on the children and reduce the therapy offered to adults. NIFS feel that the improvement in one area of therapy should not be achieved on the expense of the other. The association has started a dialogue with speech therapy institutions and Norwegian health authorities on this matter. (Nils O. Kristiansen)

THE NETHERLANDS

Nederlandse Stottervereniging Demosthenes

Several people are active in preparing our second national awareness week planned for 1997. In all branches of our association discussions are going on about the establishment of an umbrella-information center about stuttering. Each organization in this field will take part in the center but maintain its own identity and objectives. The advantage is to have our central office from where reference is possible and activities can be coordinated. (Mariëtte van Eekelen)

UNITED STATES

National Stuttering Project (NSP)

The National Stuttering Project (NSP) has enjoyed a very exciting six months. In December 1995, Executive Director Michael Sugarman, Director of Development and Administration Annie Bradberry, Board Chairman Paul Young, former Board Chairman Ned Kelley and three additional NSP members attended the American Speech-Language Hearing Association (ASHA) convention to run the NSP's exhibit booth and meet with the professional community. Many professionals stopped by to talk, meet us, and purchase NSP materials such as the new Year of the Child Who Stutters T-Shirts.

Michael, Annie, and Judith Eckardt attended ASHA's Special Interest Division for Fluency and Fluency Disorders Conference in Monterey, California at the beginning of May 1996. Lots of good collaboration continues between the NSP and the professional community.

Year of the Child who Stutters Symposiums were held in several cities this Spring. These programs were highly successful, brought together children who stutter, their parents, and speech pathologists who help children. It is a thrill to watch a child come into a room being a little shy, not sure of themselves or what the day will hold for them. By the end of the day, they are typically smiling and glad they came to meet other children who stutter. At the Fullerton, California Symposium a family from Pakistan attended the event! They were in California on travel.

A new program - called Speaking Circles - is being tested in several NSP chapters. Speaking Circles challenges people who stutter to be better public speakers. More details will be provided later as we develop this exciting new program.
(Paul M. Young)


Report From the Six ISA Working Groups


The Six ISA Working Groups (Chairpersons in brackets)
1. International Database/Sharing of Materials/Internet (Eddy Orlowski, The Netherlands)
2. Outreach to Children Who Stutter (Michael Sugarman, USA)
3. Self-help Outreach to Other Parts of the World (Jaan Pill, Canada)
4. Public Relations/Stuttering Day (Markku Laitinen, Finland)
5. Employment and Stuttering (Mel Hoffman, USA)
6. Relations with Telephone Companies (Thomas Krall, Germany)


DATABASE/INTERNET

Working Group No. 1

This Working Group seeks to use the Internet and personal computers to assist in further development of an international database of information and resources for people who stutter - and their families - all around the world.

This ISA group has set up a World Wide Web site on the Internet, at <http://www.xs4all.nl/~edorlow/isa.html>. The site is maintained by Eddy Orlowski of the Netherlands, Chair of the Database/Internet Working Group.

The ISA Internet site currently includes the following items:

Future projects will involve posting of the One Voice newsletter at the ISA Web site. As well, we seek to establish Internet links with still more organizations around the world that deal with stuttering.

We anticipate that more national databases of resources related to stuttering will be developed by national self-help organizations, and will be linked to the ISA site and other sites. We also seek to find still more effective methods for individuals and organizations to do searches of such linked databases, in a variety of languages.

As well, we anticipate that we will become active in development of Internet Video Conferencing, whereby ISA member organizations can take part in each other's national conferences through the medium of desktop video conferencing. For further information about Internet Video Conferencing projects, please contact David Block in Montreal at <dblock@accent.net>.

The Database/Internet Working Group is also working closely with the Outreach Working Group to establish contacts with Non-Government Organizations (NGO's) and professional organizations in parts of the world where ISA is not yet represented. These contacts are a first step toward contacting - or assisting in establishment of - national self-help organizations in Asia, Africa, Eastern Europe, and Latin America.

If you would like further information, help in setting up your own national World Wide Web site, or wish to assist in the ongoing work of the two above-mentioned Working Groups, please contact any member of the ISA Management Committee, or Eddy Orlowski at <edorlow@xs4all.nl>, or Jaan Pill at <jpill@interlog.com>.

Jaan Pill,
on behalf of Eddy Orlowski,
Chair, Working Group No. 1
Datatbase/Internet
Phone and fax: +31-30-2522213 or +31-30-2510318
e-mail: <edorlow@xs4all.nl>
Mail Address:
I.Boudier-Bakkerlaan 41-III
3582 VG Utrecht
The Netherlands


CHILDREN AND STUTTERING

Working Group No.2

These and many other comments were made this year during and after a symposium presented by the National Stuttering Project (NSP) (USA) as part of its dedication of 1996 as the Year of the Child Who Stutters. Ten symposiums have been scheduled in various parts of the U.S.; eight of these will have been presented by the time you read this. Remaining: Dallas, Texas, on September 21; and Los Angeles, California, on October 19. More than 250 parents, children and teenagers who stutter, and speech professionals attended the first five symposiums (New Orleans, Louisiana; Spokane, Washington; Cleveland, Ohio; Fullerton, California; and Chicago, Illinois). Two symposiums were held during June: Washington, D.C. and Long Island, New York, and one in July in Denver, Colorado.

The symposiums are designed for parents (who can "network" with one another and with leading experts in the field), for children who stutter (who will have the rare opportunity to interact with one another), and for speech therapists (who will be able to obtain current information about fluency treatment). The panels feature nationally known speakers as well as grassroots facilitation (and discussion) by adults who stutter and/or parents of children who stutter.

One of my objectives for ISA is to provide materials to members on how to organize a symposium (such as we have done this year in the NSP) on children and stuttering in their country.

For additional information, please contact me. I can provide a copy of a grant proposal, information on public relations, and a copy of the brochure by the NSP on the Year of the Child who Stutters. I can also provide suggestions on how to contact your local or national speech organization in order to get speakers.

Michael Sugarman
Chair, Working Group No.2
Children and Stuttering
Phone and fax: +1-510-430-1836
e-mail: MSugarman1@aol.com
Mail address:7626 Valentine St., Oakland
CA 94605 USA


OUTREACH

Working Group No.3

The outreach working group seeks to establish contacts with people who stutter in countries that are not yet members of ISA.

Chaired by Jaan Pill (Canada) <jpill@interlog.com>, the Outreach working group works in coordination with the ISA Management Committee (see elsewhere in this issue for names and e-mail addresses) and the ISA Database/Internet Working Group, chaired by Eddy Orlowski (the Netherlands) <edorlow@xs4all.nl>. The Outreach working group also seeks to coordinate information with ELSA (the European League of Stuttering Associations) and with IFA (the International Fluency Association). The contacts are: Edwin Farr (ELSA) <Edwin@ejfarr.demon.co.uk> and Woody Starkweather (IFA) <v5002e@vm.temple.edu>.

The Outreach group has recently been involved in communication related to starting of a self-help organization in Israel. Following a posting on STUTT-L, an Internet newsgroup devoted to stuttering, we were contacted by a therapist interested in seeing a self-help group get off the ground in Israel. Edwin Farr of ELSA, who along with Konrad Schäfers of ELSA has recently assisted in founding of a self-help organization in Greece, has followed up on that contact.

We have also established contacts with speech therapy departments in hospitals in Nigeria. These contacts have been initiated by Obim Okongwu <o.okongwu@utoronto.ca>, a chemical engineer from Nigeria enrolled in graduate studies at the University of Toronto.

We anticipate that contacts in Nigeria will lead to further contacts in Africa. We also seek to coordinate information with the Speakeasy Stuttering Association of South Africa, which will be hosts of ISA's Fifth World Congress of People Who Stutter in Johannesburg in the summer of 1998. The Fifth World Congress Internet contact address is <fvh@iafrica.com>.

We have also been updated on the efforts of ELSA to involve Eastern European countries in the next ELSA Youth Meeting, tentatively scheduled for a Benelux country in 1997. Increased contacts between associations in Eastern and Western Europe will significantly enhance the value of ISA's worldwide work on behalf of persons who stutter. As well, we are following up on contacts in China and Latin America.

In related news, Thomas Krall of the ISA management committee has arranged to have a contact address for ISA included on the package for a new CD by the popular singer Scatman John. This exciting initiative provides an additional means by which people who stutter around the world can learn of ISA's efforts to establish contact with them.

As well, Thomas Krall has acquired 39 UNICEF (United Nations International Children's Emergency Fund) contact addresses from around the world, as part of a project that seeks to establish close communication and cooperation between ISA and UNICEF. The Outreach group has received a copy of the list of UNICEF addresses and is assisting the Management Committee in establishing contacts with UNICEF.

The outreach process calls for persistence, creativity and taking advantage of chance opportunities. The potential rewards are tremendous for all of us. You can assist in our efforts to increase the worldwide flow of information about stuttering. If you wish to help in the work of the Outreach group, please contact me.

Jaan Pill
Chair, Working Group No.3
Outreach
Phone:+1-416-252-0842
Fax: +1-416-252-0720
e-mail: jpill@interlog.com
Mail address:
P.O.Box 2274
100 City Center Drive
Mississauga, ON Canada L5B 3C8


PUBLIC RELATIONS FOR ISA

Working Group No.4

Public Relations (PR) in ISA

ISA has already had its first birthday! ISA was one year old on July 25, 1996. It is too bad that we were not together where we could sing "Happy birthday to ISA ..." and cut a cake!

The mission of ISA is of course worldwide. When we look back to Linköping, where the Constitution of ISA was ratified, we can say that this was one big step forward for improving conditions for children and adults who stutter and the parents of children who stutter in all countries. It's not a big step in terms of everyday life and practical problems, but it surely is a big step in creating stronger cooperation among all the independent self-help organizations of people who stutter - national and international.

In Linköping we talked about long term goals in the work of ISA. Many good ideas, many "visions", were presented - children outreach, self-help outreach in the 3rd world and other nations, relations with telephone companies, etc., etc. I think PR in this connection is linked to everything that ISA is and does. Every project - short-term, medium-term, and long-term - needs Public Relation - that is, communication skills in many fields and levels.

The starting point of ISA and PR

In many ways, the starting point for developing the work of the International Stuttering Association is very favorable. National and international self-help organizations have already been cooperating for many years. Most of us now have new friends from many countries. We also have experiences to share; I guess that all national organizations have some "special skills" that can enrich the work of ISA. And, finally, modern technology - and particularly the Internet - makes communication with each other much easier!

Short term - PR and the resources of ISA

I think that our first goal is to establish strong cooperation between national organizations under this big umbrella (ISA). We need to communicate with each other. This may seem like a small thing but I believe that it is vital that we do this. The work of ISA depends for its success on the work of individual stammerers and their resources and enthusiasm. We all know more or less how it is in our everyday life. The world goes round and round. Time is one limitation. Our resources to do practical work as a private person are limited.

Long term - employee in the future

In the long term ISA will need at least one person who can work full time in ISA, handling administration, correspondence, PR, etc. This person would work in close cooperation with the management committee and with the working groups. This is an issue that we should all think about. Another thing to think about is what organization (concerning the whole world) could help ISA start world wide cooperation. Perhaps the United Nations would give some support and advice, and/or perhaps those working in health care and different social fields could assist us.

Do you want to be a member of the Public Relations working group?

You will be very welcome with your ideas and thoughts. Please write me or call me. Have a very nice summer 1996!

Markku Laitinen
Chair, Working Group No.4
Public Relations
Member of the Stuttering Association of Finland
Phone: +358-0-477 5428
Mail address:
Mannerheimintie 55 A 18
00250 Helsinki, Finland


EMPLOYMENT DISCRIMINATION AND STUTTERING

Working Group No.5

Let's hear from you!

We've heard a lot about the ADA (Americans with Disabilities Act), the legislation passed in the USA in 1990. What about other countries? Most of the information I've collected so far is USA-related - yet ISA is an international organization!

Please send me an e-mail, or a fax, or a letter. Tell me about legislation (enacted or proposed) in your country relating to employment discrimination against individuals with disabilities (including people who stutter). Share with me some stories about cases of discrimination in the job situation that you know about, whether it involves a first interview or the unfair treatment to an employee who happens to stutter.

ELSA meeting - "Stuttering and Employment"

I reported in One Voice 5 about the ELSA meeting in Denmark in November 1995, which was in part a follow-up to a seminar in Amersham/UK in May 1994 on the subject of Stuttering and Employment. Konrad Schäfers has provided me with the results of an ELSA survey among the European national stuttering associations, summarizing responses to questions such as these:

  1. Has your group carried out any kind of survey relating to stuttering, employment, and discrimina-tion? If so, please summarize the results.
  2. Has your association published articles, or conducted seminars, on the subject?
  3. Has your association debated whether stuttering is a handicap or a disability? If so,what was the outcome?
  4. What percentage of your membership consider stuttering as a disability or handicap?
  5. Does your country have any discrimination laws relating to people with a disability? If so, do these laws cover people who stutter?
  6. Does your country provide special support for people who stutter in their search for a job?
  7. Are there any stutterers in high employment positions in your country?
We don't have space in this issue of One Voice to print the summary of responses. If you are interested, please let me know, and I will mail you a copy. If there is enough interest, maybe we can include this in the ISA Web page on the Internet.

Internet - T. David Kehoe

Thomas David Kehoe (owner of Casa Futura Technologies and former president of the San Jose (California) chapter of the NSP, near where I live) has some excellent information on the Internet on "Stuttering, Employment, and the Americans with Disabilities Act" (FAQ#2). This can be accessed at <http://www.mankato.msus.edu/dept/comdis/kuster/stutter.html>. Look under "Information about Stuttering", then "Stuttering, Employment, and the ADA". Comments can be sent to David at Kehoe@netcom.com.

Printed out, this consists of six pages of good material. An example: an interesting story from Woody Starkweather, Ph.D., entitled "The Case of the Disfluent Weatherman". The point: although a person may be hesitant or disfluent in speaking (as was this weather forecaster for the National Weather Service), it was wrong to conclude that the person was also "indecisive" and therefore not a candidate for promotion. Another example: included in David's material are two pages of suggestions on "How to Handle Job Interviews."

Brochure

Through Michael Sugarman, I have learned of an attorney at a law firm in Oakland, California (near San Francisco) who is preparing a brochure on Stuttering and Employment. More on this next time!

Please send me information and interesting stories from your country. We'll publish what we can in One Voice 7. Maybe we can include some in our ISA Web site.

Mel Hoffman
Chair, Working Group No.5
Employment Discrimination and Stuttering
Phone: +1 408 245 5654
Fax: +1 408 730 8154
e-mail: Melhoffman@aol.com
Mail address:
811 Nisqually Drive
Sunnyvale, California 94087-4214 USA


RELATIONS WITH TELEPHONE COMPANIES

Working Group No.6

Summary

Working Group No.6 (Relations with Telephone Companies) was set up to assemble information about possible fundraising opportunities through requesting assistance and eventually obtaining donations or grants on a regular basis from telephone companies.

A group in Germany has been working on such a project for about three years in an effort to get funding from Telekom, the large telephone company in Germany. Not only is this phone company very profitable, but it is believed that many of the 800,000 people who stutter in Germany pay higher phone bills because of their speech rate, so it is appropriate that Telekom donates to self-help groups for people who stutter.

The working group will consider expanding this fundraising effort - presently being led by the German Association for People Who Stutter - so that a portion of the funds, when and if received, will go to ISA and ELSA. Perhaps donations can also be obtained to support international projects and to help cover rent and other office expenses of these organizations.

Promotional plans later this year

In the autumn of 1996 the German Association of People Who Stutter plans to promote this idea publicly with press conferences, television, etc., based on the work of a national working group and the board of directors of the organization. Four or five other meetings are also planned to discuss and explain all the details. Also, a nice poster will be created to promote this campaign in a positive way. A suggested title for the poster is "Who earns most money from us?"

A "Telephone Company Discussion Paper" already exists in the first draft form in Germany. This draft will be discussed and perhaps revised somewhat in subsequent meetings to make it more perfect, more sympathetic, and more creative. However, the board of directors has authorized me to share this first draft in One Voice 6. Thank you to Marion Stelter, Martin Barde and Dr. Reiner Nonnenberg for your cooperation.


Some main parts of the 1st draft of the "Telephone Company Discussion Paper"

The German Association of People Who Stutter wants to cooperate with the German Telephone Company; favors a Social Sponsoring of the German Association by the Telephone Company; has concrete proposals to the German Telephone Company.

Our idea is not to pay for example 10 DM less fee per month for every person who stutters, or 20% less telephone charges for every telephone call. This seems to be problematic. Our demand is to drastically improve the conditions of adolescents, adults, parents of children who stutter and especially for our children. This we want to do in the future with the help of the Telephone Company.

The German Association of People Who Stutter is the organization that advocates the interests of people who stutter in Germany. Many of the 800,000 people who stutter in Germany are very handicapped in their speech rate. Because of this fact these persons have much higher telephone bills every month.

The German Telephone Company is the company in Germany which accounts every year more than 37 billion phone calls and sends 400 million telephone bills - and from this around 4 million to people who stutter. So the German Telephone Company has regularly a great deal more income because of this speech handicap - and has had this for 100 years.

People who stutter in Germany feel that the Telephone Company should hand out this money again to help improve conditions for people who stutter.

Concrete proposals

  1. The German Telephone Company and the German Association of People Who Stutter will found a not-for-profit foundation to be called Telekom Foundation Stuttering (TFS). This is a working title. This foundation will regularly get money from the German Telephone Company and other sponsors. Delegates from the Telephone Company and the German Association of People Who Stutter will regularly decide which national or international projects should be supported with the money of the foundation (see also Proposal #2).
  2. The German Telephone Company will regularly support up to a certain amount the office of the German Association of People Who Stutter, the office of the European League of Stuttering Associations (ELSA) and the office of the International Stuttering Association (ISA) - for example in rent, office furniture and equipment, professional telecommunica-tion materials, not paying any telephone fees for these offices, etc.

Why is this concept good for both sides?

Benefits for the German Association of People Who Stutter

Improving the conditions for people who stutter by

Benefits for the German Telephone Company

With the help of the Telephone Company we are on the right track to reach as undisturbed communication as possible, on the national and international level.

If you want to write comments on this draft or to tell us about this subject in your country, or if you are interested in joining this working group, please contact:

Thomas Krall
Chair, Working Group No.6
Relations with telephone companies
Phone: +49-211-741585
Fax: +49-211-7404428
e-mail: 100605.2720@compuserve.com
Mail address:
Mohrunger Str. 17
40599 Düsseldorf, Germany


Who is Scatman John?

Many of us know that he's a musician, but may not know many details about his career.

To provide more information about him, we visited an Internet World Wide Web site dedicated to the Scatman, at <http://scatman.by.net>. We thank Szymon Krasucki at <szymon@cybercomm.net> for permission to share the following information from the Web site with you:

John Larkin, "Scatman John," is a singer/songwriter of scatting/jazz/pop/techno music. He was born in El Monte, California on March 13, 1942 and grew up in nearby El Sereno, California. He now lives in California. He has been a jazz musician in the past and has performed with such artists as Ella Fitzgerald, John Coltrane, and Charlie Parker. He now is a dance/techno musician. John has a stuttering problem and his singing, rapping, and scatting through positive, motivational lyrics, are like therapy for him.

His first single, "Scatman", was conceived while John was performing at the Alexandra Hotel in Loen, Norway in August 1994. It was recorded in September 1994 and released in Germany in December 1994. About 2.5 million of his albums and 3 million singles have been sold worldwide. John has been working on a new album We've Got to Learn to Live Together with Tony Catania and Ingo Kays, his producers. The album has been finished, and will be released in the fall in Japan, Europe, and Canada.

Some Awards John has Received

More about Scatman John, his life and a personal letter to the stutttering community

Hello to you all

By way of introduction, my name is John Larkin. I am a person who stutters and have been stuttering since I first learned to speak. I am also a singer and a jazz pianist. I would like to present a brief recent personal history to my fellow stutterers.

Somewhere about 1990 I had become very frustrated with the Jazz scene in Los Angeles and my wife Judy and I decided to rent out our condominium and make a move to Germany to try to further my career. After several months of going through the usual trials and tribulations of moving to another country and overcoming culture shock, Judy and I managed to secure an agent and I began to get booked into a European hotel circuit and I was well on my way to becoming the best hotel pianist I could be.

My feelings were ....."Success at Last".....I was so grateful to have actually had the opportunity to make a living as a musician. This, I thought, was as good as it could get and I was becoming a very good hotel singer and pianist. Yes, I learned to sing the "standards" .........Cole Porter, Rogers and Hart, Irving Berlin, Satchmo, The Beatles, and I looked and sounded real good on stage!.......But...my speaking off stage, would never let me forget that awful thorn in my side that I would always pretend wasn't there.......I would pretend that I didn't stutter. Rather strange isn't it? It was as if I was going through life trying to conceal the fact that an elephant was following me everywhere I went. Well to continue my story.......

In August 1994, I was booked in the Alexandra Hotel in Norway. One day during that engagement my agent called me. He was aware that I was also a good scat singer and had, for some time, been trying to secure me a record deal. During that phone call he brought up the idea of combining scatsinging and rap music. He said that he had a hunch that it was perfect timing for something like "Scat-rap" to happen on the music scene. He proceeded to take the concept to BMG Music in Hamburg. BMG heard the concept and loved the idea and gave the go-ahead to record a single. Now any normal artist would have been happy about that kind of news don't you think?

But not me.....I'm still trying to conceal this elephant following me and my thinking was..."Oh my God, What if the world finds out that I STUTTER. " Well, panic set in and I had to face the fact that this single I was about to record may have the chance of possibly becoming a hit...and that meant that I might have to encounter the horror of horrors....RADIO!!!..
..and maybe even ......Oh no......TELEVISION!!!!!!

What was I going to do? I had to face the reality of what I thought I had kept in the background....I HAD TO TURN AND FACE THE ELEPHANT. I asked my wife Judy what shall I do? Well I need to tell you all that that was the day that my life started to change. It was my wife who graciously suggested the idea that I should come out of hiding, take off the veil, and start getting into the habit of telling the world that I stutter.......We both decided that the best way for me to start was to talk about my stuttering in the lyrics to the song that I was about to record.

The name of the song was Scatman and I chose the stage name "Scatman John." The rest is history. The song climbed the charts in Germany to No. 2. It began to spread throughout Europe, Asia, South America, Australia, Canada, Mexico. Then the single "Scatman's World" was recorded and released. Its success was a repeat of the first song "Scatman." The album, also called "Scatman's World", was recorded and released and sold 3 million copies worldwide. The lyrics to the first single "Scatman" talked directly about stuttering and millions of fellow stutterers all over the world heard it! They felt my sincere intentions of trying to help. Since that time, I have had the opportunity to meet many people from many stutterers organizations worldwide and, to add to my joy, this year I have been awarded the Charles Van Riper award. I will be going to Maryland in September to receive it.

During my concert tour of Japan this year I met with Mr. Satoru Hanazono of the Genyukai. During that meeting Satoru handed me a copy of ONE VOICE. I must say that it made me very happy to find out about the ISA. I immediately began an e-mail correspondence with Thomas Krall. In May of this year while recording in Germany, I had the opportunity to meet Thomas and spend quality time with him. I must say that I found him a delightful man to be with. I discovered also that Thomas has two important qualities that are essential to serve this vital organization. Those qualities are humility and assertiveness. Thomas, I salute you, for being an originator and developer of the International Stuttering Association.What a great idea......a common denominator organization serving to unify the fresh air and the best thing that could happen to the world stuttering community.

In my heart, I would love to work more directly with the various worldwide organizations but with my time schedule and the release of my second album, I have had to accept the fact that the best service I can do for stutterers is to just keep on doing the Scatman Project and keep trying to put out positive lyrics. My music and lyrics are dedicated to serve the world's solution rather than perpetuate any of the world's problems.

I thank you all for listening and I thank the ISA for coming into existence.

John Larkin (Scatman John)


One Voice is published twice a year by the International Stuttering Association, Mohrunger Str. 17,40599 Düsseldorf, Germany.
Editor: Shinji Ito
Associate Editors: Mel Hoffman, Thomas Krall
Phone:+49-211-741585
Fax:+49-211-7404428

ANNUAL MEMBERSHIP/SUBSCRIPTION
FOR NATIONAL ASSOCIATIONS
Regular 300 - 100 DM
In some cases the regular membership fee
can be reduced. It will even be possible to be a
member of ISA without paying any money,
if there is a valid reason.

The mission of ISA is: To improve the conditions for children, adolescents and adults who stutter and parents of children who stutter in all countries, especially by sharing concepts and experiences in stuttering self-help and therapies. ISA should provide a forum for all points of view that are consistent with the mission of ISA.

One Voice is a forum for views and information about stuttering. The opinions expressed are those of the individual contributor, and are not necessarily the opinion of the International Stuttering Association. The ISA accepts no responsibility for the accuracy of any opinion or information provided by any contributor, nor do we endorse or reject any therapeutic strategies, programs, or devices mentioned in these papers.

Not copyrighted. Material included in this publication is not copyrighted and may be reproduced freely without permission. If desired the entire newsletter may be reproduced without permission. Wide distribution of the newsletter by stuttering associations is encouraged. When quoting an article or portion of an article, a reference to One Voice as the source would be appreciated.



The 5th World Congress of
People Who Stutter in South Africa in Two Years!
July 5th - 9th, 1998

LET'S KEEP TALKING!
The Topic for the 5th World Congress of People Who Stutter in Johannesburg in 1998

"LET'S KEEP TALKING!!!"- This is the theme of the 1998 World Congress of People Who Stutter, and we certainly hope to continue stimulating the open communication and networking that was so much a part of the 1995 World Congress in Linköping, and so important in the community of people who stutter in general. Since the last newsletter, Speakeasy South Africa has been hard at work developing the preliminary brochure for the 1998 World Congress of People Who Stutter. By now some of you will already have these brochures. For those branches who have not yet received brochures, we would really appreciate it if you could let us know the number of brochures your organization needs so that we can get these to you as soon as possible. You can contact Marlene on fax number 2711-786-3916 to let her know.

The more people who come to the congress, the more successful it will be!!! Start saving now so that you can join us in Johannesburg from 5th through 9th July 1998 for a conference never to be forgotten in a country that will give you the chance of having the holiday of a lifetime!!

If you have any questions or suggestions about the 1998 World Congress of People Who Stutter, or if you are thinking of making a presentation, please contact us. Also contact us so that you can be on our mailing list for the congress information. Our contact address is: Speakeasy South Africa P.O.Box 87442 Houghton 2041, South Africa.

e-mail: fvh@iafrica.com
Phone:
Marlene +2711-786-6660
Simon +2711-442-8499
Merle +2711-465-1960
Fax: +2711-788-3354 or +2711-786-3916


The 2nd World Congress on Fluency Disorders
August 18 - 22, 1997

Call for Proposals on topics related to self-help - at IFA's Second World Congress on Fluency Disorders in San Francisco, California, August 18 - 22, 1997.
Are you interested in making a presentation at the second IFA Congress?

Here are some of the topics that the NSP's Michael Sugarman, who is the consumer representative on the Congress Program Committee, would like to see explored at the Congress:

The Congress will also feature a panel on Self-Help and Speech Professionals which will include representatives from ISA and IFA.
The final presentation will be a two-hour Live...Talk Show on Stuttering Treatment with full audience participation.
Michael also wants to set up a Parent Panel on Self-Help. This will be coordinated by Lee Caggiano. Parents of children who stutter interested in taking part in the panel should contact Lee, who coordinated the highly successful New York Symposium on the NSP's Year of the Child Who Stutters. They had 160 participants, including 58 parents!

Lee Caggiano is at <LCaggiano@aol.com>.
Alternatively, Lee can be contacted c/o Annie
Bradberry at the National Stuttering Project at:
5100 East La Palma Ave. Suite 208
Anaheim Hills, CA 92807
Phone: +1-714-693-7480
+1-800-364-1677 (toll-free within the U.S.)
Fax: +1-714-693-7554
e-mail: nspmail@aol.com

Michael Sugarman is at <MSugarman1@aol.com>.
His home address is:
7626 Valentine St.
Oakland, CA 94605 USA
Fax: +1-510-430-1836

Jaan Pill of CAPS will be pleased to pass along
messages. He can be reached at <jpill@interlog.com>,
by phone at 416-252-TALK (8255) or by fax at 416-252-0720.
He can be reached on the '888' line toll-free within Canada
at 1-888-STUTTER (788-8837).
The paper mail address is:
Canadian Association for People Who Stutter
P.O. Box 2274
100 City Centre Drive
Mississauga ON, L5B 3C8
Canada

If you wish to submit proposals related to any of the events described above - or have suggestions about people who'd be good to have as presenters - please contact Michael or any of the other persons listed at the end of this message.


QUESTION CORNER

To the readers: The Argentine Stuttering Association has the following questions. Any group or person is welcome to give answers and send them to the editors, which will be put in the next One Voice 7.


New ISA Members
Norwegian Stammering Association (NIFS)
Nils Ø. Kristiansen (ELSA Delegate)
Duesvei 38, 4022 Stavanger, Norway
Phone: +47-51-528964
Fax: +47-22-235700
Association Vaincre le Bégaiement (AVB)
Hubert Zeiger
Address: 1A, place des Orphelins
F-67000 Strasbourg, France
Phone: +33-88-751212
Fax: +33-88-224141


EDITORS' NOTE

September 1996

Dear friends:

Many things have been happening in the International Stuttering Association since the publication of OneVoice 5 eight months ago!

Take a look at the six Working Group reports published elsewhere in this issue. These groups are looking into matters such as the Internet (including better communication and sharing of materials), Children and Stuttering, Outreach (to countries where presently there is no ISA member association), Public Relations, Employment Discrimination and Stuttering, and Relations with Telephone Companies (this describes an ongoing effort to obtain donations and grants from telephone companies).

Thomas Krall has communicated many times with popular singer "Scatman John" (John Larkin) in an effort to have a contact address for ISA included on the packages containing John's new CD's. We want to thank John Larkin very much for his grand cooperation. You'll see an article by Scatman John elsewhere in this issue.

We welcome the Norwegian Stammering Association and the Association Vaincre Le Bégaiement as new member associations.

Lack of money continues to be a challenge for us. We can't send as many copies of One Voice 6 to the associations as we would like. Usually we can only afford to send one copy. We ask that you reproduce additional copies and distribute these at conventions, congresses, conferences, workshops, etc., sponsored by your organization. We have added a notice making it clear that the material contained in One Voice 6 is not copyrighted and that it is OK for a copy center to reproduce additional copies. Please help us to "get the word out".

We need your help. If your organization has not yet paid its dues, please try to do so soon!

Speakeasy South Africa is already busy planning the 5th World Congress, which will occur in Johannesburg, South Africa, from July 5th to 9th, 1998. It's two years away - but now is the time to start planning to come! Be sure to schedule some time to do some traveling on this very interesting continent either before or after the Congress. Thanks to Marlene Green and the Committee of Speak Easy South Africa for coordinating these preparations. See elsewhere in this for more information.

One Voice 6 was edited by Shinji Ito as Editor in Chief, assisted by Associate Editors Mel Hoffman and Thomas Krall. Our thanks to Jaan Pill, who has helped us a great deal in many ways. Special thanks go to Kazue Shinji, who spent many hours assisting Shinji Ito by doing all the word processing work in English and by assisting him in reading the English language documents.

Please send us your comments and suggestions. Communication works two ways. Would you like to help? Please let us know. For example, you might want to contact the Chair of one of the six working groups and ask to be part of the committee making up that group.

Mel Hoffman, Shinji Ito, Thomas Krall

One Voice 7 is planned for February of 1997. Thank you for sending the feedback of the questionnaire we sent for the edition of One Voice 6. However, we did not have enough space in this edition to include them. We will include them in the next publication. Those groups who have not returned us the feedback yet we will look forward to receiving them as well as your ideas, suggestions and comments. (Editors)


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